LINDSEY’S STORY
DIAGNOSIS: FANCONI ANEMIA
I always dreamed of having my own family…
![LINDSEY'S STORY I was going to have 4 kids, but 2 of them would be adopted. I don't know if it's going to happen now.](https://hospitallives.com/wp-content/uploads/2017/06/untitled-543-e1580556595104.jpg)
LINDSEY'S STORY
I was going to have 4 kids, but 2 of them would be adopted. I don’t know if it’s going to happen now.
![CONCERNS Today I feel worried. I went to the cardiologist. In a nutshell, my lungs are running at half capacity on both sides. It’s scary and I’m uncomfortable](https://hospitallives.com/wp-content/uploads/2017/04/untitled-455-1.jpg)
CONCERNS
Today I feel worried. I went to the cardiologist. In a nutshell, my lungs are running at half capacity on both sides. It’s scary and I’m uncomfortable
DREAMING
There is a water slide I recall from many years ago. It goes very fast. I loved the feeling of the speeding water and rush of adrenaline.
I can’t bend my knees.
STILLNESS
Every time I try physical therapy, the swelling gets worse. I’m growing more and more dependent on my parents…
COMFORT MEASURES ONLY
Today we had the conversation about comfort measures only. As I was about to decide, the swelling started to improve. It’s really a hard decision.
I'M STILL HERE
“I have an incredible way of bouncing back.:” —
Fanconi anemia is an inherited disease that can lead to bone marrow failure and cancer. Though considered primarily a blood disease, FA may affect all systems of the body. It is a complex and chronic disorder that is psychologically demanding. FA is also a cancer-prone disease, affecting patients decades earlier than the general population. (Source: fanconi.org )
Lindsey and her family fought her rare disease every day. She always spoke of the good in life and the small moments that mattered. For additional information on Fanconi Anemia: www.fanconi.org